Louisa Ferguson is consultant in otolaryngology and cleft lip and palate, who operated on Will. He had a button gastrostomy fitted, just like his sister, in August 2020 at 10 months old. Will underwent surgery to make it easier for him to breathe but is still unable to swallow liquid as it leads to chest infections. When the baby takes a breath, the part of the larynx above the vocal cords falls in and temporarily blocks the baby's airway.
Will was diagnosed with laryngomalacia, a birth defect where the larynx (voice box) is soft and floppy. Will spent three months in the hospital, where multiple tests were carried out which revealed that he too had a problem with his swallow.” He stopped breathing twice and had to be resuscitated – it was a really frightening time. Rebecca said: “We took a massive psychological hit when he too had to be transferred to Evelina London. He was diagnosed with sepsis, a life-threatening reaction to an infection, and was transferred to Evelina London Children’s Hospital for specialist treatment at just two days old. When the couple’s son, Will, was born in October 2019, they immediately knew that something was wrong as he couldn’t stop vomiting and had trouble breathing. The button is held in place by a balloon inside her stomach which is inflated with water. It gives her a safe and long-term method of getting nutrition. Izzy has a button gastrostomy, which is a small feeding tube inserted directly into her stomach so that she can receive fluid without swallowing.
She can’t swallow fluid and she can’t eat sandwiches, chicken nuggets or ice cream – the things that other four year olds like.” Rebecca said: “She was admitted to hospital 16 times in her first year and even now can only eat what you would give to an eight-month-old, like purees and some fruits. We didn’t know it at the time, but milk and saliva were going straight to her lungs, which meant she was basically drowning.”Īt just two days old, Izzy underwent emergency life-saving surgery at Evelina London Children’s Hospital. Rebecca, from Sidcup in south east London, said: “During her development in the womb, her food pipe mistakenly connected to her airway instead of to her stomach. This rare, life-threatening birth defect affects a baby's oesophagus (food pipe) and trachea (airway), requiring emergency surgery as a newborn baby. Parents, Rebecca and Tom Golding, have tattooed images of a feeding tube on to their stomachs to support their two children who have both been fitted with one.ĭaughter, Izzy, was born in April 2018 with trache-oesophageal fistula and oesophageal atresia.
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